Storyville (1997)

Season 16: Episode 2

As part of Storyville's Survivors season, My Friend Sam: Living For the Moment is about an extraordinary man named Sam Frears. Sam, now 39 years old, was born with an extremely rare genetic disorder - Familial Dysautonomia - which left him with only a 50% chance of making it to his fifth birthday. The film reveals a complex, engaging, exceptional person as he struggles with everyday life while pursuing his joint goals of getting his acting career back on track and finding love.